(b) Grants under this title shall be payable in such installments and subject to such conditions as the Secretary may determine to be appropriate to assure that such grants will be effectively utilized for the purposes for which made. (c) A grant may be made or contract entered into under section 1001 or 1002 for a family planning service project or program only upon assurances satisfactory to the Secretary that (1) priority will be given in such project or program to the furnishing of such services to persons from low-income families; and (2) no charge will be made in such project or program for services provided to any person from a lowincome family except to the extent that payment will be made by a third party (including a government agency) which is authorized or is under legal obligation to pay such charge. For purposes of this subsection, the term "low-income family" shall be defined by the Secretary in accordance with such criteria as he may prescribe. VOLUNTARY PARTICIPATION 300a-5 SEC. 1007. The acceptance by any individual of family 42 U.S.c. planning services or family planning or population growth information (including educational materials) provided through financial assistance under this title (whether by grant or contract) shall be voluntary and shall not be a prerequisite to eligibility for or receipt of any other service or assistance from, or to participation in, any other program of the entity or individual that provided such service or information. PROHIBITION OF ABORTION 300a-6 SEC. 1008. None of the funds appropriated under this 42 U.S.C. title shall be used in programs where abortion is a method of family planning. 42 U.S.C. 300b 42 U.S.C. 300b-1 TITLE XI-GENETIC BLOOD DISORDERS PART A SICKLE CELL ANEMIA PROGRAMS SICKLE CELL ANEMIA SCREENING AND COUNSELING PRO- SEC. 1101. (a) (1) The Secretary may make grants to public and nonprofit private entities, and may enter into contracts with public and private entities, for projects for the establishment and operation of voluntary sickle cell anemia screening and counseling programs, primarily through other existing health programs. (2) The Secretary shall carry out a program to develop information and educational materials relating to sickle cell anemia and to disseminate such information and materials to persons providing health care and to the public generally. The Secretary may carry out such program through grants to public and nonprofit private entities or contracts with public and private entities and individuals. (b) For the purpose of making payments pursuant to grants and contracts under this section, there are authorized to be appropriated $20,000,000 for the fiscal year ending June 30, 1973, $30,000,000 for the fiscal year ending June 30, 1974, and $35,000,000 for the fiscal year ending June 30, 1975. PROJECT GRANTS AND CONTRACTS SEC. 1102. (a) The Secretary may make grants to public and nonprofit private entities, and may enter into contracts with public and private entities and individuals, for projects for (1) research and research training in the diagnosis, treatment, and control of sickle cell anemia, (2) the development of programs to educate the public regarding the nature and inheritance of the sickle cell trait and sickle cell anemia, and (3) the development of sickle cell anemia counseling and testing programs and other programs for diagnosis, control, and treatment of sickle cell anemia. (b) For the purpose of making payments pursuant to grants and contracts under this section, there are authorized to be appropriated $5,000,000 for the fiscal year ending June 30, 1973, $10,000,000 for the fiscal year ending June 30, 1974, and $15,000,000 for the fiscal year ending June 30, 1975. VOLUNTARY PARTICIPATION SEC. 1103. The participation by any individual in any 42 U.S.C. 300b–2 program or portion thereof under this part shall be wholly voluntary and shall not be a prerequisite to eligibility for or receipt of any other service or assistance from, or to participation in, any other program. APPLICATIONS; ADMINISTRATION OF GRANT AND CONTRACT PROGRAMS SEC. 1104. (a) A grant under this part may be made 42 U.S.c. 300b–3 upon application to the Secretary at such time, in such manner, containing and accompanied by such information, as the Secretary deems necessary. Each applicant shall (1) provide that the programs and activities for which assistance under this part is sought will be administered by or under the supervision of the applicant; (2) provide for strict confidentiality of all test results, medical records, and other information regarding screening, counseling, or treatment of any person treated, except for (A) such information as the patient (or his guardian) consents to be released; or (B) statistical data compiled without reference to the identity of any such patient; (3) provide for appropriate community representation in the development and operation of any program funded by a grant under this part; (4) in the case of an application for a grant under section_1101 (a) (1), provide assurances satisfactory to the Secretary that (A) the screening and counseling services to be provided under the program for which the application is made will be directed first to those persons who are entering their child-producing years, and secondly to children under the age of 7, and (B) appropriate arrangements have been made to provide counseling to persons found to have sickle cell anemia or the sickle cell trait; (5) set forth such fiscal control and fund accounting procedures as may be necessary to assure proper disbursement of and accounting for Federal funds paid to the applicant under this part; and (6) provide for making such reports in such form and containing such information as the Secretary may reasonably require. (b) In making any grant or contract under this part, the Secretary shall (1) take into account the number of persons to be served by the program supported by such grant or contract and the extent to which rapid and effective use will be made of funds under the grant or contract; and (2) give priority to programs operating in 42 U.S.C. 300b-4 42 U.S.C. 300b-5 42 U.S.C. 800c areas which the Secretary determines have the greatest number of persons in need of the services provided under such programs. PUBLIC HEALTH SERVICE FACILITIES SEC. 1105. The Secretary shall establish a program within the Public Health Service to provide for voluntary sickle cell anemia screening, counseling, and treatment. Such program shall be made available through facilities of the Public Health Service to any person requesting screening, counseling, or treatment, and shall include appropriate publicity of the availability and voluntary nature of such programs. REPORTS SEC. 1106. (a) The Secretary shall prepare and submit to the President for transmittal to the Congress on or before April 1 of each year a comprehensive report on the administration of this part. (b) The report required by this section shall contain such recommendations for additional legislation as the Secretary deems necessary. PART B-COOLEY'S ANEMIA PROGRAMS COOLEY'S ANEMIA SCREENING, TREATMENT, AND COUNSEL- SEC. 1111. (a) (1) The Secretary may make grants to public and nonprofit private entities, and may enter into contracts with public and private entities, for projects for the establishment and operation, primarily through other existing health programs, of Cooley's anemia screening, treatment, and counseling programs. (2) The Secretary may make grants to public and nonprofit private entities, and may enter into contracts with public and private entities and individuals, for projects for research in the diagnosis, treatment, and prevention of Cooley's anemia, including projects for the development of effective and inexpensive tests which will identify those who have the disease or carry the trait. (3) The Secretary shall carry out a program to develop information and educational materials relating to Cooley's anemia and to disseminate such information and materials to persons providing health care and to the public generally. The Secretary may carry out such program through grants to public and nonprofit private entities or contracts with public and private entities and individuals. (b) (1) For the purpose of making payments pursuant to grants and contracts under subsection (a) (1), there are authorized to be appropriated $1,000,000 for the fiscal year ending June 30, 1973, and for each of the next two fiscal years. (2) For the purpose of making payments pursuant to grants and contracts under subsection (a) (2), there are authorized to be appropriated $1,700,000 for the fiscal year ending June 30, 1973, and for each of the next two fiscal years. (3) For the purpose of carrying out subsection (a) (3), there are authorized to be appropriated $1,000,000 for the fiscal year ending June 30, 1973, and for each of the next two fiscal years. VOLUNTARY PARTICIPATION 42 3000-1 SEC. 1112. The participation by any individual in any 48.8.C. program or portion thereof under this part shall be wholly voluntary and shall not be a prerequisite to eligibility for or receipt of any other service or assistance from, or to participation in, any other program. APPLICATIONS; ADMINISTRATION OF GRANT AND CONTRACT PROGRAMS 300c-2 SEC. 1113. (a) A grant under this part may be made 42U.S.C. upon application to the Secretary at such time, in such manner, containing and accompanied by such information, as the Secretary deems necessary. Each application shall (1) provide that the programs and activities for which assistance under this part is sought will be administered by or under the supervision of the applicant; (2) provide for strict confidentiality of all test results, medical records, and other information regarding screening, counseling, or treatment of any person treated, except for (A) such information as the patient (or his guardian) consents to be released. or (B) statistical data compiled without reference to the identity of any such patient; (3) provide for appropriate community representation in the development and operation of any program funded by a grant under this part; (4) set forth such fiscal control and fund accounting procedures as may be necessary to assure proper disbursement of and accounting for Federal funds paid to the applicant under this part; and (5) provide for making such reports in such form and containing such information as the Secretary may reasonably require. |