Human Genome Diversity Project: Hearing Before the Committee on Governmental Affairs, United States Senate, One Hundred Third Congress, First Session, April 26, 1993
U.S. Government Printing Office, 1993 - 95 lappuses
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already American analysis answer anthropology areas believe benefits biological blood cell lines collection Committee concerns CONGRESS THE LIBRARY consideration countries cultures deal Department develop difficult discussion disease effort ethical example existing Federal funding gene genetic Genome Diversity Project goals going Greely groups Health HGD Project Human Genome Diversity Human Genome Project identify important individuals informed consent initial Institutes interest involved issues kind knowledge LIBRARY OF CONGRESS limited look material misuse noted obtain opportunity organized origins participants particular patenting planning pointed populations possible problems Prof proposed questions raised reasons represent require risk samples scientific Senator AKAKA sequence sickle cell social specific subjects testing Thank understanding University variation workshop
60. lappuse - An explanation of whom to contact for answers to pertinent questions about the research and research subjects' rights, and whom to contact in the event of a research-related injury to the subject; and (8) A statement that participation is voluntary, refusal to participate will involve no penalty or loss of benefits to which the subject is otherwise entitled, and the subject may discontinue participation at any time without penalty or loss of benefits to which the subject is otherwise entitled.
27. lappuse - Throughout the postwar period, federal mission agencies, in particular, the National Institutes of Health (NIH), the National Science Foundation (NSF), and the Department of Defense (DOD), have provided the vast majority of funding for US university-based research6 (see Table 1.2). Although federal agencies...
55. lappuse - Report . prepared by the National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research in 1978.
45. lappuse - An estimated $123 million was provided by the National Science Foundation, the National Institutes of Health, and the National Aeronautics and Space Administration for the support of research facilities in 1963.
93. lappuse - He has served numerous academic and government organizations in the field of science, including the National Institutes of Health, the National Science Foundation, and the President's Science Advisory Committee.
59. lappuse - ... 1. A statement that the study involves research, an explanation of the purposes of the research and the expected duration of the subject's participation, a description of the procedures to be followed, and identification of any procedures which are experimental; 2.
9. lappuse - The Human Genome Initiative is a worldwide research effort that has the goal of analyzing the structure of human DNA and determining the location of the estimated 100,000 human genes. In parallel with this effort the DNA of a set of model organisms will be studied to provide the comparative information necessary for understanding the functioning of the human genome. The...
9. lappuse - Mr. Chairman and Members of the Committee: It is my pleasure to appear before you today as the General Counsel of the Federal Labor Relations Authority.
55. lappuse - There is no reason to believe that the ethical concerns raised by this Project are insurmountable. . . . The value of this research and the urgency caused by the continuing disappearance of isolated human populations make the ethical concerns all the more important.