Human Genome Diversity Project: Hearing Before the Committee on Governmental Affairs, United States Senate, One Hundred Third Congress, First Session, April 26, 1993U.S. Government Printing Office, 1993 - 95 lappuses |
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African American analysis analyzed ancestral answer anthropology areas base pairs believe benefits Biodiversity biological blood groups blood samples breast cancer cell lines chromosomes concerns countries cultures develop disease DNA samples DNA segments DNA sequence effort ethnic groups example Federal funding Gary Ellis genetic differences genetic information genetic variation Genome Diversity Project Genome Research Giddings goals Greely noted HGD Project Human Genome Diversity Human Genome Organization Human Genome Project human populations identify important indigenous populations informed consent Institutes of Health interest involved Juengst Kenneth Weiss loci malaria mapping markers Marrett Mary-Claire King material Medical Sciences molecular mutations National Institutes NISHIMI organized participants patenting popu problems Prof proposed questions racism Reid risk sampled populations scientific scientists Senator AKAKA sickle cell anemia social issues specific technology transfer testimony tion transformation understanding
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62. lappuse - An explanation of whom to contact for answers to pertinent questions about the research and research subjects' rights, and whom to contact in the event of a research-related injury to the subject; and (8) A statement that participation is voluntary, refusal to participate will involve no penalty or loss of benefits to which the subject is otherwise entitled, and the subject may discontinue participation at any time without penalty or loss of benefits to which the subject is otherwise entitled.
57. lappuse - There is no reason to believe that the ethical concerns raised by this Project are insurmountable. . . . The value of this research and the urgency caused by the continuing disappearance of isolated human populations make the ethical concerns all the more important.
5. lappuse - Thank you very much, Mr. Chairman. I appreciate very much the opportunity to appear before you in these hearings on the birth control pill.
29. lappuse - Throughout the postwar period, federal mission agencies, in particular, the National Institutes of Health (NIH), the National Science Foundation (NSF), and the Department of Defense (DOD), have provided the vast majority of funding for US university-based research6 (see Table 1.2). Although federal agencies...
57. lappuse - Whatever schema is eventually put forward by the National Commission for the Protection of Human Subjects of Biomédical and Behavioral Research should be considered as tentative and subject to continuous review.
47. lappuse - An estimated $123 million was provided by the National Science Foundation, the National Institutes of Health, and the National Aeronautics and Space Administration for the support of research facilities in 1963.
95. lappuse - He has served numerous academic and government organizations in the field of science, including the National Institutes of Health, the National Science Foundation, and the President's Science Advisory Committee.
61. lappuse - ... 1. A statement that the study involves research, an explanation of the purposes of the research and the expected duration of the subject's participation, a description of the procedures to be followed, and identification of any procedures which are experimental; 2.
11. lappuse - The Human Genome Initiative is a worldwide research effort that has the goal of analyzing the structure of human DNA and determining the location of the estimated 100,000 human genes. In parallel with this effort the DNA of a set of model organisms will be studied to provide the comparative information necessary for understanding the functioning of the human genome. The...
75. lappuse - Working Group on the Ethical, Legal, and Social Implications of the Human Genome Project.